Finding a Way Forward: How to Create a Strong Legal Framework for Data Integration
Cross-sector data sharing and integration has become commonplace, and for good reason. When governments and their partners bring together data safely and responsibly, policymakers and practitioners are better equipped to understand the complex needs of individuals and families, allocate resources where they’re needed most to improve services, and measure the impacts of policies and programs holistically. Data sharing and integration is also not without risks, and clear legal frameworks are essential to mitigate those risks, protect privacy, and guide responsible data use. Designing the appropriate legal framework for the context can be a complex task and a test of endurance.
This resource was created to frame out key considerations and provide effective practices for agencies working to “find a way forward” to share and integrate data. It includes a summary of federal and state laws related to data sharing, four essential questions to guide decision-making, real state and local examples, and agreement templates and checklists.
For more information in a variety of formats, check out the additional resources below:
AISP Guidance and Tools
Yes, No, Maybe?: Legal & Ethical Considerations for Informed Consent in Data Sharing and Integration. Actionable Intelligence for Social Policy. University of Pennsylvania. Kemp, D., Hawn Nelson, A., & Jenkins, D. (2023)
Strong Legal Frameworks for Data Integration: Four Questions for Moving Forward. Actionable Intelligence for Social Policy. American Public Human Services Administration (APHSA) Magazine, Kemp & Hawn Nelson, October 2022
Finding a Way Forward Part I, AISP Content Specific Meeting, Presented at Actionable Intelligence for Social Policy, Philadelphia, PA, Kemp & Hawn Nelson, August 2022
Finding A Way Forward Part II, AISP Content Specific Meeting, Presented at Actionable Intelligence for Social Policy, Philadelphia, PA, Hogle, P. & Rouse, H., January 2023
Finding a Way Forward Part III, AISP Content Specific Meeting, Presented at Actionable Intelligence for Social Policy, Philadelphia, PA, Gold, R. & Thomas, L., April 2023
Protecting Student Privacy While Creating and Using Integrated Data Systems. 2014 AISP Network Meeting, Presented at Actionable Intelligence for Social Policy, Philadelphia, PA. Hawes, M., December 2014
National Forum on Youth Violence Presentation: HIPAA Privacy Rule Considerations. Presented by Iliana L. Peters, JD, LLM. HHS Office for Civil Rights: November 1, 2011